Like it never happened!

"Like it never happened" that is what they told us. "Like she never needed a transplant and never had one." What an awesome God we serve! At Lillis one year post transplant appointments we were there for five full days of tests. Very full days and a few little issues...like some light graft vs host and skin issues. This time it was a snap. We had two mornings of appointments, the hardest being first. The blood draw was difficult. They took about 12 viles of blood from her little body. They had to poke her three times to get enough. This all happens after fasting for 8 hours. That meant no breakfast. Then because the draw was difficult and took longer than expected we were off to the next appointment before we could grab a bite to eat. Then, when we could finally get down to the deli, they were closed for an hour between breakfast and lunch. We would need to be in our next appointment before they re-open. So, she snacked a little and held up much better than Mommy. Hans took us to the Spaghetti Factory for lunch and that made it all better.

Tuesday went a little better. We had to go to Childrens Hospital (where Lilli's transplant was) for a couple of x-rays. The hospital looks NOTHING like it did five years ago and navigating all the new procedures was a little messy. However, we made it through. Lilli also had an eye appointment. The doctor told us she needs glasses. Not too surprising, Hans had glasses pretty young too and Anna has them also. Our eye doctor here had been keeping an eye on the situation and just didn't act as "aggressively". So, not a big surprise there.

On Wednesday we shopped in University Village most of the morning and then went to our final consult at 4. That's when they told us the amazing news. She not only looked amazing for a transplant kid but just amazing for any kid. They ran a large number of blood tests for everything it seems like and the only thing that was even remotely low was vitamin D which the doctor said is normal for kids in winter. We still need to keep an eye on her eyes, skin, and teeth but she said we are one of the few families that follows the whole "see the dentist twice a year and they eye doctor once a year" thing. So, unless Lilli has some major set back we don't have to return. They would like us to but it wouldn't be necessary unless a problem comes us. She said it was like the whole thing never happened!

For those of you who went through that journey with us...we KNOW it happened don't we. We remember the hundreds of syringes. The middle of the night meds, the hickman line cleaning. Lets not forget the monkey hair! Anyway, five years now and God has shown us once again...He is here...He is in control...His plan is perfect. And just to keep us focused on Him, He left us with the cp to remind us how much He loves and cares for us.

It was an amazing week and we thank all of you for your prayers and support of Lilli and the big girls too. Thanks for loving on them while we were away.